Hyper Eosinophilia Syndrome (HES)
Idiopathic Eosinophilia

We are aware there are some forms of eosinophils produced by KNOWN causes. This may make them more treatable as the condition that caused it may sometimes be treated. Such possibilities might be Valley Fever, Infectious Diseases, Allergies or Asthma. These cases CANNOT be part of our study.

The people that I have discovered so far are of the UNKNOWN cause variety. This is the area where we really need to accumulate information. So far, I have only found two other people with this "unknown cause" version of (HES). All three of us, on different treatments, of different ages and in different parts of the country. All three are female.

One of the patients I am aware of is treated now only once every three months by a combination of IV chemo as well as steroids and is functioning normally. I don't know if that cause was ever identified. Another is riding the rollercoaster of steroids and hydrea doses trying to stabilize their count. She is having a harder time with day to day activities. I have been on IntronA chemo every few days for the last two years to stabilize my count. I was unable to tolerate the steroid treatments. It has stabilized my count, however I am unable to work at this point.

As you can see, we are all different and we all had symptoms of some sort. Some folks may have a high count and have NO symptoms. That is why whatever information you can supply would be greatly appreciated. We're just going to start our own group until the doctors catch up.

Home |About HES | Contact US| Survey Form

CHECK Out Our Support Group

The American Partnership
for Eosinophilic Disorders
is a non-profit advocacy organization for those living with eosinophilic esophagitis, eosinophilic gastroenteritis, eosinophilic colitis, hypereosinophilic syndrome, and other eosinophilic disorders.

©Copyright 2000 (Barb Shiely) All Rights Reserved

The content provided by on this site is for information purposes only and is in no way intended to be a substitute for medical consultation with a qualified professional. We encourage Internet users to be careful when using medical information. If you are unsure about your medical condition, consult a physician. Although we carefully review our content, we cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can we assume any liability for the content of Web sites linked to our site.